Things you learn when living with chronic disease

It’s a little ambitious for me to write the topic as above, but I could not find a better way to summarize today’s content. I like to pass my time on Pintrest, and the other day while doing so, I came by a page written by someone who has...
Read More

Changes!

It has been two months since I last wrote. The past 8 weeks have been quite dynamic. I finally reached remission and Behcets had been dormant for some months, so the rheumatologist decided to get me off Prednisolone and lower my Azathioprine dose. I was relieved to finally stop...
Read More

A lonely Existence

The summer holidays began in early July, and my children have been home from school since then. We got a chance to travel to the coast of Kenya together with some friends and their children. It has been a fantastic holiday! For a long time now, my husband and...
Read More

Recovery

I have not been writing for about a month, until now. I can finally say confidently, that after a year of daily pain etc., I finally see recovery approaching. I am taking Gabapentin for fibromyalgia and it has been working well so far, which has reduced the number of...
Read More

This May

It has been a long month. I had started taking Duzac for fibromyalgia pain, and surprisingly, the pain did get better. However, I had a myriad of horrible side-effects! I fell into deep depression with suicidal thoughts, I had manic periods, and trouble peeing. It was so hard to...
Read More

Chronic Illness and Dreams

The dreams I am speaking of here aren’t those that we get when sleeping. Although, I do miss remembering my dreams… Nowadays when I sleep, I don’t dream…or I don’t remember anything if I do dream… I don’t know. One of the two. I digress. The dreams I am...
Read More

A New Journey

About a year ago, I got my diagnosis of Behcet’s disease and I sighed with relief. It was relief to finally find a doctor who knew what was wrong with my body. After many years of struggling with symptoms and sometimes wondering whether I had a mental disease, I...
Read More

Oh my hair!

About a year ago, I began the natural hair journey. My reason for doing so was that I was losing a lot of hair due to inflammation. Well, it worked. The hair loss decreased considerably, and my hair became thick and healthy. Obviously, I got used to my hair...
Read More

Convalescence (Recovery)

I have been feeling better each day, with my blood sugar under control and the inflammation in my body also responding well to the immuno-suppressors. All things considered, I feel wellness on its way. However, I still get fatigued fast and I cannot go through a whole day without...
Read More

Being!

In the past few days my flare has been getting better, and I finally feel hopeful of going back to lower pain days. Even better, I left the house yesterday all by myself! I went to get a pedicure and a manicure after a long time! I also managed...
Read More