Re-Defining Yourself When You Have Chronic Illness

It has been almost a year since the last time I wrote something to post. While I’ve been away, I have lived through a new diagnosis and improvement of older illnesses. On top of that, there has been the Covid_19 situation around the world that has brought new opportunities...
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Psychological Support

From previous posts, I have spoken about the constant depression that I have been fighting for the past three years. Well, this year, I finally sought help from a psychologist after giving up the individual fight. So far, I have had four sessions, which unfortunately, I had to press...
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FIBROMYALGIA

After many years of having an autoimmune disease (Behcets), I developed a chronic pain condition called Fibromyalgia. I lived with this condition for a year before finding other people in my country living with the same condition. In my search for support, I was lucky enough to discover ‘The...
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New Year Resolutions When You Have Chronic Illness

Somehow, it’s a new year! I can’t believe how fast the past year has flown by. It was like a blur to me. So many days of pain, depression and suicidal thoughts that I became a master at acting a role to mask the darkness that was swallowing me....
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Things you learn when living with chronic disease

It’s a little ambitious for me to write the topic as above, but I could not find a better way to summarize today’s content. I like to pass my time on Pintrest, and the other day while doing so, I came by a page written by someone who has...
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Changes!

It has been two months since I last wrote. The past 8 weeks have been quite dynamic. I finally reached remission and Behcets had been dormant for some months, so the rheumatologist decided to get me off Prednisolone and lower my Azathioprine dose. I was relieved to finally stop...
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A lonely Existence

The summer holidays began in early July, and my children have been home from school since then. We got a chance to travel to the coast of Kenya together with some friends and their children. It has been a fantastic holiday! For a long time now, my husband and...
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Recovery

I have not been writing for about a month, until now. I can finally say confidently, that after a year of daily pain etc., I finally see recovery approaching. I am taking Gabapentin for fibromyalgia and it has been working well so far, which has reduced the number of...
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This May

It has been a long month. I had started taking Duzac for fibromyalgia pain, and surprisingly, the pain did get better. However, I had a myriad of horrible side-effects! I fell into deep depression with suicidal thoughts, I had manic periods, and trouble peeing. It was so hard to...
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Chronic Illness and Dreams

The dreams I am speaking of here aren’t those that we get when sleeping. Although, I do miss remembering my dreams… Nowadays when I sleep, I don’t dream…or I don’t remember anything if I do dream… I don’t know. One of the two. I digress. The dreams I am...
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