The forgotten heroes

The care givers of those with chronic diseases often get forgotten. Their role is lost behind the scenes. I want all those taking care of us to know that you are appreciated and irreplaceable. You deserve so much happiness and we hope that it comes your way every day....
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Support systems: Friends and Family

I had a fantastic weekend! I went swimming with my family and friends and spent the whole day just playing in the incredibly warm water at the Lake Bogoria Spa, that makes your skin feel like new. I dare say we had more fun than the children! 😉 It...
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Exercise/ physical activity when on Prednisone

I have been in a flare-up for the past two months, and it’s just starting to come down. This has meant that I’ve had to take higher doses of prednisone to cool down the flare. Well, I’ve been on prednisone for about two years non-stop now. Every time the...
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Cancelling Plans

I think my middle name is officially going to change to “Party Pooper”! I seem to cancel last minute on most of the events that I commit to. I’m sure anyone with chronic pain/ diseases understands this part. It is a hard topic though. Because explaining yourself to people...
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Exercising when you suffer from chronic pain

The current world has become health conscious, and this has caused an upsurge of diets and exercise routines all over the internet and among friends. “Exercising fixes everything health!!” In my opinion, that is the grossest misconception. Being a nutritionist, I am an advocate for healthy exercise routines, and...
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How I survive high pain days

I can’t say that there are days without pain. A normal day ‘without pain’ for me is pain levels of around 4. Those are good days, or should I say, days when faking ‘normal’ is easier. Bad pain days are unbearable! I cannot master even half a smile. I...
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Flare-up

I’ve been in a flare-up for the last two weeks and this time it has really landed on my left leg. I have hot nerve pain all day! From my hip all the way down to my toes. I can’t drive because our car is a stick -shift (manual...
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Depression

Lately, I feel like I want to disappear. I’m tired of fighting. Feels like everything is fight. Even simple things like getting out of bed that would ordinarily be mindless are a fight. The fatigue is so bad that I feel like my heart will stop beating. Sometimes I...
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Road to Diagnosis

I’m sure that my story is common to all who have an autoimmune disease. I have always been one to fall sick easily all through childhood, but the brunt of it began when I was 15. The joint pain kicked in and the never-ending stomach pain that at the...
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