Tag: Behcets

A lonely Existence

The summer holidays began in early July, and my children have been home from school since then. We got a chance to travel to the coast of Kenya together with some friends and their children. It has been a fantastic holiday! For a long time now, my husband and...
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Recovery

I have not been writing for about a month, until now. I can finally say confidently, that after a year of daily pain etc., I finally see recovery approaching. I am taking Gabapentin for fibromyalgia and it has been working well so far, which has reduced the number of...
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A New Journey

About a year ago, I got my diagnosis of Behcet’s disease and I sighed with relief. It was relief to finally find a doctor who knew what was wrong with my body. After many years of struggling with symptoms and sometimes wondering whether I had a mental disease, I...
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Oh my hair!

About a year ago, I began the natural hair journey. My reason for doing so was that I was losing a lot of hair due to inflammation. Well, it worked. The hair loss decreased considerably, and my hair became thick and healthy. Obviously, I got used to my hair...
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Convalescence (Recovery)

I have been feeling better each day, with my blood sugar under control and the inflammation in my body also responding well to the immuno-suppressors. All things considered, I feel wellness on its way. However, I still get fatigued fast and I cannot go through a whole day without...
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Being!

In the past few days my flare has been getting better, and I finally feel hopeful of going back to lower pain days. Even better, I left the house yesterday all by myself! I went to get a pedicure and a manicure after a long time! I also managed...
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Low days…

I had a long day today. Last night, I realised that I was having a reaction to one of the diabetes medications, which is categorised as a Sulfonylurea, a second generation of treatment since I am already on the first treatment without much improvement. I went to hospital this...
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Just another Saturday

Today has been long. I spent the whole morning in hospital together with my husband and two children. Luckily, my children are already used to me being sick and frequent visits to the hospital, so they handle it quite well. I was ok yesterday. In fact, I left the...
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Support systems: Friends and Family

I had a fantastic weekend! I went swimming with my family and friends and spent the whole day just playing in the incredibly warm water at the Lake Bogoria Spa, that makes your skin feel like new. I dare say we had more fun than the children! 😉 It...
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Exercise/ physical activity when on Prednisone

I have been in a flare-up for the past two months, and it’s just starting to come down. This has meant that I’ve had to take higher doses of prednisone to cool down the flare. Well, I’ve been on prednisone for about two years non-stop now. Every time the...
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